Monthly Archives: August 2017

我穿越疯狂的旅程:一个精神分裂症患者的故事

在吉隆坡的书局找不到这本书,所以去中国工作的时候,请那里的同事帮我买的,人民币40元。有兴趣看的人,可以和我借,或网上买。

By Elyn R. Saks

By Elyn R. Saks

情况允许的情况下,我不爱看翻译书,但是这次却选择了看这本原著英文的中文书,其中是为了一些病人还有他们的家属,希望我可以给他们介绍一些这类型的中文书,而我之前看过的都是有英文版。如果读者还有知道任何关于精神疾病患者自传的书的介绍,请留言让我知道,谢谢!

大部分时候,广大民众听说的精神分裂患者,一般都是在新闻上,显然这些新闻报道的也不是关于他们的什么好事情,通常都是一些伤害了自己或别人的新闻,也很容易让人误以为精神分裂或精神疾病患者就是有暴力倾向,对社会造成危害(研究显示,事实并非如此,甚至相反)。

而本书的作者,是一名法学院和精神病学教授,明显发病的时候,还是一名大学生。所以,是的,她在“成为一名精神病患者”后,再经历多年的坚持和努力,经历无数的挫折,才有今天的生活,依旧正在吃抗精神药物和进行谈话治疗。

这本书蛮厚的,同时也表示她写得挺仔细,其中她在早期也患有厌食症(anorexia)、强迫症(OCD)、抑郁症(depression)、疑病症(hypochondria也称“健康焦虑症”health anxiety)。它不只帮助读者更了解精神分裂症从患病初期,否定诊断拒绝治疗等,到后期的选择性接受,整个心理路程与经历,也可以从患者的角度,去看到社会、医疗、教育等的不公。

作者谈到住院经历(身体和四肢长时间被固定在床上):

在我最后的两次住院经理中,医生对我的预后诊断分别是“很差”和“危重“。假如没有那些非常熟练的、非常敬业的谈话治疗师–精神分析师–对我进行治疗,那么我肯定还停留在医院所预言的那种悲惨的生活之中。

关于接受这个疾病并与它共处余生,

如果你是一位患有精神疾病的人,你所面临的挑战是找到适合你的生活。然而,事实上,难道这不是我们所有人所面临的挑战吗?无论我们是否患有精神疾病。我的幸运之处不是我已经从精神疾病中康复。我还没有康复,我也将永远不能康复。我的幸运之处在于:我已经找到了自己的生活。

心理问题/精神疾病病友互助小组(吉隆坡/巴生)

在国外,不管是什么疾病,互助小组(support group)都是蛮常见的,比如抗癌勇士、强迫症患者等。过去也曾有好一些病人问过我,在马来西亚有这种小组吗… 所以在这里我提出一些意见,有兴趣或有其它看法的人,欢迎联络我…

互助小组类型:

  1. 抑郁症、情绪障碍
  2. 强迫症
  3. 焦虑与焦虑相关障碍
  4. 精神分裂,妄想、幻觉相关障碍
  5. 照护者、患者家属

什么是互助小组?做些什么?

  1. 每个月或每两个星期见一次面,大约一小时
  2. 认识和你面对一样或类似问题的人
  3. 轻松讨论一些主题(由我引导)
  4. 彼此分享、鼓励、支持、学习

语言

  1. 英语
  2. 中文/广东话

地点

  1. 吉隆坡欧阳专科医疗所(Jalan Pudu)
  2. 巴生Manipal Hospital Klang (Bukit Tinggi)
  3. 巴生河流域一代的咖啡馆

必要条件:

  1. 病人的意愿(不是被逼的;愿意出席、参与、讨论、分享、聆听)
  2. 至少三人才能进行
  3. 尊重其他人、尊重隐私权(不泄露其他人的隐私)
  4. 承担费用(行政、材料、场地等)(若有)

目前这只是初始阶段,如果你有什么意见和想法、或者有兴趣参与的话,请留下联络方式,也可以电邮 hello@huibee.com 或致电/whatsapp 017-2757813

英文版本:http://huibee.com/2017/08/support-groups-in-kl-klang/

Support Groups in KL / Klang

I’ve been asked about support groups quite a few times and been thinking how I can start this. It’s definitely something very common in western countries, I’m not sure how it will work here in Malaysia. Now I’m proposing the idea here, and for anyone who reads this and is interested in any of the support groups, please get in touch, let me know what you think and how we can start this and get it going!

Support groups for:

  1. Depression or mood related problems
  2. OCD (Obsessive Compulsive Disorder)
  3. Anxiety or stress related problems
  4. Schizophrenia and psychotic related disorders
  5. Carers (immediate family etc)

What is it? How does it go? What do we do?

  1. Meet monthly or every fortnightly for an hour or so
  2. Getting to know people who share the same or similar problems
  3. Casual discussion following a theme that we set (led by me)
  4. Sharing, supporting and learning among/from each other

Languages:

  1. English
  2. Mandarin / Cantonese

Venues:

  1. Klinik Pakar Au Yong, Jln Pudu, KL
  2. Manipal Hospitals Klang
  3. Some cafes in Klang Valley?

Requirements:

  1. Patient’s willingness! (is not forced by others to join us; willingly attend, participate, share and listen to others)
  2. At least 3 to form a group
  3. To treat others with respect and maintain confidentiality
  4. To share the cost of a small administrations/materials/venue fees (if any)

These are just some ideas for now, if you have some ideas or are interested, please do leave your contacts (email or contact numbers) below or get in touch by emailing hello@huibee.com or calling/whatsapp 017-2757813

A Beautiful Mind (2001/film)

I categorised this post under “book review”, though there is a book under this same title, I’m writing about the 2001 film, directed by Ron Howard.

The book/film is based on the life of John Nash, a Nobel prize winner in Economic sciences, who was diagnosed as having paranoid schizophrenia, with delusions and hallucinations.

I started to watch the film without knowing it has anything to do with mental illnesses, just thought it’s just another biographical film (like one that I just watched last week, “The man who knew infinity”, based on the life of Srinivasa Ramanujan, an Indian mathematical genius).

It is a film portraying paranoid schizophrenia well, so well that when we, as audience see things through the eyes of Russel Crowe (John Nash), we might not even realise that those are all delusions and hallucinations, and couldn’t differentiate that those are not even reality.

The film also emphasises the importance of family supports and continuation of medication (which according to some sources of the web, is not based on what John Nash really did). During the later part of his life, he got on without taking any medicine, would still hallucinate but just do not respond to them. This is the part that I personally like in particular, sometimes medicine may not stop all the hallucinations completely, but when you’re aware which is reality and which aren’t, you can carry on with life, with them being there. There was a scene when a man approached him, and he had to ask his student who walked past, “Can you see him?”, to make sure that the man was real, not his hallucination!

I’d recommend it to family and friends of those who are diagnosed as schizophrenia, it does help understanding the illness better to quite an extent, and of course for those who’d like to understand the illness better.